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deep-dive ยท 9 min ยท for menstruator, clinician

Why gynaecology research under-serves women of colour

The data gap isn't accidental. Here's where it comes from, what it means for care today, and what to do about it.

This is general education, not medical advice. If a symptom is worrying you, contact your GP or NHS 111.

The default patient

For most of modern medicine's history, the default research subject was a white man. Women were formally excluded from most US clinical trials until 1993. Even after inclusion, subgroup analysis by race and ethnicity often wasn't required.

The result: reference ranges, treatment protocols, and diagnostic thresholds built on a subset of the population, then applied to everyone.

What this looks like in gynae care

Fibroids
Black women are 2โ€“3ร— more likely to develop fibroids and get them earlier, but the treatment pathway was designed around a demographic in which fibroids are rarer and later-onset.
Endometriosis
Historic teaching described endometriosis as a disease of 'career women' โ€” code for white and middle-class. Diagnosis rates in Black and Asian women have been artificially low as a result.
Maternal mortality
In the UK, Black women are around 3ร— more likely to die in pregnancy and childbirth than white women (MBRRACE-UK data). Asian women around 2ร—.
Pain assessment
Multiple studies show clinicians rate the same pain as less severe in Black patients, and are less likely to prescribe adequate analgesia.

What to do with this information

This isn't a reason to distrust every clinician โ€” plenty are excellent advocates. It's a reason to bring more evidence into the room. A written symptom log, a specific ask, and a willingness to escalate or seek a second opinion aren't rudeness โ€” they're the workaround for a system that wasn't designed for you.

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